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I should be thankful. But I'm not.

  • Dec. 22nd, 2008 at 12:59 PM
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I tell people when they express sympathy to me for having Coeliac that there are worse things to have. And there are. After all, we have a "fix" of kinds. Don't eat gluten and you won't get sick. Pretty simple.

But it sucks. Not because it's hard, though it is, but because so much of our socialization in this country has to do with food. Because my family is Southern and it's easier to lie to my great-grandmother and say we've eaten already when she offers food I can't have. It's rude and I hate it but I've tried explaining it and it's just easier to lie. She doesn't get it. No one gets it. No matter how many times I explain, they don't really see me as being healthier and they don't understand that I HAVE A DISEASE DAMNIT AND IT SUCKS. Only my mom has really noticed a difference, from when I was dying and crazy to now and she is thisclose to joining me in my misery.

It's isolating. I'm always on the outside, even when I bring my own food. No one really wants to try what I can eat, too. They'll just make their own to eat while I have mine. It's not bad, I promise! Gluten-free stuff can be amazing, as evidenced by the green bean casserole my husband made for Thanksgiving that my mother deemed the best she'd ever had. But no one wants to try it.

It makes me wonder if maybe I'd be better off with another disease. One with a less easy "fix." Because then maybe people would realise that it is a disease. Maybe then it would be something they could understand. Maybe then people wouldn't be so resistant to getting tested and dealing with it. Maybe I wouldn't feel so alone in a room full of my own family.

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Glutened.

  • Dec. 15th, 2008 at 12:52 PM
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Usually when I've been glutened, it's something pretty straightforward. I itch and my stomach hurts. Sometimes I'm pretty irritable. Pretty simple, even if it's subtle enough that I don't always notice it. But this time has been different. I got hives. I got angry. My muscles, with a kink put into the delivery of their nutrients, tensed up and impinged my nerves, primarily on the right side. I was left with a hand I had trouble using comfortably and a shoulder that's hard as a rock. What got me?

A shampoo/conditioner set and my daughter's vitamins. Needless to say, she was worse off, having directly ingested the stuff. She was a bear, had a rash, and some muscle tension in her shoulders that bothered her.

We got lazy, clearly. I didn't check the shampoo and conditioner because the others from that brand were OK. We used it for, what? A week, probably, before we noticed. The vitamins were being used for about three weeks before we noticed. My child has suffered because I wasn't paying attention. She's not old enough to tell us, so we have to be better about reading the signs. My muscles are angry at me and I'm going to the doctor to-morrow to see about getting therapy to help them recover. On my own, I'm taking the same vitamins I've been taking (prenatal, omega-3s, and B12) plus I've reintroduced (GF) creatine to help them recover. I started that yesterday and they feel better already, which is just fantastic.

One of the worst things, of course, is my mental reaction to this. I feel like I've spiraled back down to where I was, sometimes. I can't do anything. There's a heavy fog over my mind. I'm tired. I can't think. I get lost in conversations and even when I don't it takes a great deal of effort. I get songs stuck in my head for days and I can't get them out--something I'd forgotten I had trouble with while I was still eating gluten. I obsessed over things for hours, keeping myself up late and miserable for it. My brain got stuck in a loop from time to time and it was truly awful.

I'm slowly healing, again. I can feel it. But I will be checking labels obsessively from now on and I will not be tempted to cheat. How can I be? This is the worst reaction I've ever had (unless you count the one that caused a miscarriage), and it's not worth it. Not to me. Not any more.

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Glutened.

  • Oct. 10th, 2008 at 9:10 PM
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Who would've thought eggs could gluten you?? I guess it's free-range for us from now on!

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